Epidermolysis Bullosa

With an incidence rate of 1 in 20,000 people, epidermolysis bullosa should be cured as soon as possible. This disease, who’s genetic and protein targets are mostly known, causes children’s skin to blister and fall off at the slightest touch, due to a problem with their skin’s anchoring membranes. The condition has been called, by one parent, “so graphic and painful most can’t bare to see it.” This is what a cure might look like for EB. A cure for EB as defined here will be a safe, systemic (whole-body) treatment that will result in a lifetime cure. Currently treatment is typically reduced to palliative care. Please see this link for a first hand account, and give to help establish a Cure Prize for this condition.

Who’s doing Research?

Click on this link to see who’s doing research on Epidermolysis Bullosa.

Public Donation Record

From Amount Message
Alexander Neary $10 The first donation for this Cure Prize
Alexander Neary $300 Donation for the epidermolysis bullosa fund